What is Living with Nephrotic Syndrome?
Living with Nephrotic Syndrome is a dedicated patient-to-patient support community for families affected by Nephrotic Syndrome. Nephrotic Syndrome Patients Support Community is powered by BensFriends.org, a network of patient support communities for rare diseases, and is run by volunteer moderators who have been affected with Nephrotic Syndrome.
Who can join Living with Nephrotic Syndrome?
If your family has been affected by Nephrotic Syndrome, consider Living with Nephrotic Syndrome your second home. Living with Nephrotic Syndrome, as well as the rest of BensFriends.org’s patient communities, is free for members to join.
What is Nephrotic Syndrome?
Nephrotic syndrome is a kidney disorder that causes your body to pass too much protein in your urine.
Nephrotic syndrome is usually caused by damage to the clusters of small blood vessels in your kidneys that filter waste and excess water from your blood. The condition causes swelling, particularly in your feet and ankles, and increases the risk of other health problems.
What is BensFriends.org?
In 2007, Ben Muñoz suffered a rare form of stroke caused by an AVM. He was unable to find the support he needed during the most difficult time, so he created an online support community AVMSurvivors.org to connect with others like him. AVMSurvivors.org led to the founding of BensFriends.org, driven to provide patient-to-patient support communities for people living with rare diseases.
BensFriends.org is a network of patient communities for people living with rare diseases. Launched in November 2007, BensFriends.org provides valuable patient support by creating and running compassionate, responsive communities. BensFriends.org maintains dozens of patient communities and has changed thousands of lives.
You can learn more about BensFriends.org at http://www.bensfriends.org or watch one of our videos at http://www.youtube.com/BensFriendsVideos.